Disease/Disability Information

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    The structure of the services index and definitions of the terms contained herein were orginally published in A Taxonomy of Human Services: A Conceptual Framework with Standardized Terminology and Definitions for the Field by the Information and Refferal Federation of Los Angeles County, Inc., 3035 Tyler Ave, El Monte, CA 91731; Copyright (c) 1983, 1987, 1991. No part of there listing of human service terms and definitions may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electrical, mechanical, photocopying, recording or otherwise without the prior written permission of the Information and Referral Federation of Los Angeles County, Inc.

    Taxonomy Code: LH-2700.1700

    Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions.

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    There are 77 matching records.
    Service NameDescriptionLocationProgramAgency
    Alzheimer's Information & Referral Services (Colorado Springs) - Alzheimer's Association Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.El Paso CountyColorado Springs - Alzheimer's Association - Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources - Alzheimer's Association Colorado ChaptersProvides support, education, and resources to persons with Alzheimer's or Dementia, their caregivers, and family members, including: - A lending library covering a wide variety of Alzheimer's topics - Memories in the Making (MIM), an art program for individuals with Alzheimer’s disease or related dementia that brings comfort and joy through the process of creating watercolors - Educational series for those who are new to Alzheimer's disease, or in the middle to late stages of the disease - Family options counseling - Community referrals to physicians, diagnostic services, day care centers, residential care, hospices, elder law attorneys, and area agencies on aging - A quarterly newsletter - Support groups for persons with Dementia/Alzheimer's, their families, and caregiversWeld CountyNortheast Colorado/Greeley / Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Denver) - Alzheimer's Association Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.Denver CountyDenver - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Fort Collins) - Alzheimer's Association Colorado ChaptersProvides education, support, and connections to resources for persons with Alzheimer's Disease and other dementias, as well as their families and caregivers.Larimer CountyFort Collins - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Louisville) - Alzheimer's Association Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.Boulder CountyLouisville - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Pueblo/Southern Colorado) - Alzheimer's Association Colorado ChaptersOffers a variety of services to persons with Alzheimer's or Dementia and their caregivers or family members, including: - The Safe Return Program; a nationwide system to help identify, locate, and return inidviduals who are memory impaired due to Alzheimer's disease or a related disorder to safety - Support group meetings for persons with Alzheimer's and their family or caregivers - A helpline provides telephone information, support, and referrals in Southern Colorado - Family Options Counseling - Community education workshopsPueblo CountyPueblo/Southern Colorado - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources - Western Slope Region, Alzheimer's Assocaiton Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.Mesa County2232 N. 7th StreetAlzheimer's Association Colorado Chapters
    American Sexual Health Association- STD research; public policy; educational pamphlets. - Herpes Resource Center, which provides Herpes information via the Helper newsletter, books, audio and video tapes, and pamphlets. - Herpes and HPV support groups; HPV support program, which provides information via pamphlets and the HPV News journal; information hotlines - CDC National STD and AIDS hotlines.Out of StateOrganizational/Community/International Services - American Social Health AssociationAmerican Sexual Health Association
    Ataxia Information and Support - National Ataxia FoundationProvides information, referrals to neurologists, a newsletter, support groups, an annual conference, and a pen pal program for ataxia families to connect.Out of StateNational Ataxia FoundationNational Ataxia Foundation
    Autism Information and Support - Autism Society of ColoradoOffers a variety of events, activities and information services which include: - Autism Navigation Center for information, referrals, advocacy and support, support and social groups from birth to adulthood - Sensory-friendly events with our community partners - Autism 101 and other presentation to help understanding of the autism community for community groups, school districts, organizations and employers - Annual Autism Walk Denver CountyAutism Society of ColoradoAutism Society of Colorado
    Autism Information - Autism SpeaksProvides a website with information on the following: - Family Services - Advocacy - Research - Events - Walk information - Merchandise - Partners - Resource Guide - Tool Kits - Autism Apps Out of StateAutism SpeaksAutism Speaks
    Autism Resources - Autism SpeaksCoordinators respond to family inquires/requests by phone or email. Provide 137 resources listed for the state of Colorado. Also accepts additional resources and information about a service or service provider that would be helpful to individuals with autism and their families.Out of StateAutism SpeaksAutism Speaks
    Brain Injury Support Groups - Brain Injury Alliance of ColoradoConnects individuals with a brain injury and their families with the following: - Adult and youth recreation programs - Support groups - Life skills workshops - Peer advocacy - Information and referralsDenver CountyBrain Injury Alliance of ColoradoBrain Injury Alliance of Colorado
    Brain Tumor - American Brain Tumor AssociationOffers support and information for people living with a brain tumor, with over twenty publications addressing the different types of tumors and current research.Out of StateAmerican Brain Tumor AssociationAmerican Brain Tumor Association
    Cancer Information and Referral Services (Colorado Springs) - American Cancer SocietyProvides personalized information, support and resource referrals to cancer patients, caregivers, and their families.El Paso CountyColorado Springs - American Cancer SocietyAmerican Cancer Society
    Cancer Information - National Cancer InstituteProvides confidential answers to specific questions about cancer and assistance to smokers who want to quit.Out of StateNational Cancer InstituteNational Cancer Institute
    Cerebral Palsy Information & Referral Services - Cerebral Palsy Association of Colorado SpringsProvides education around cerebral palsy to schools, families, and individuals. Also provides resource and referral information for those with cerebral palsy and their families.El Paso CountyCerebral Palsy Association of Colorado SpringsCerebral Palsy Association of Colorado Springs
    Childhood Cancer Information & Referral Services - Candlelighters of Southern ColoradoProvides support for families and individuals touched by childhood cancer and blood disorders through information and referral services, as well as monthly family uproot events. El Paso CountyCandlelighters of Southern ColoradoCandlelighters of Southern Colorado
    Chronic Disease Self-Management Education - South Central Colorado SeniorsProvides classes for seniors age 60+ around chronic disease self-management.Alamosa CountySouth Central Colorado SeniorsSouth Central Colorado Seniors
    Cleft Lip and Cleft Palate Information - Pueblo Department of Public Health and EnvironmentProvides education and information on cleft lip and/or cleft palate, including feeding, obtaining needed equipment, accessing insurance, and medical care.Pueblo CountyPueblo Department of Public Health and EnvironmentPueblo Department of Public Health and Environment
    Cranial Nerve Information and Assistance - Acoustic Neuroma AssociationProvides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.Out of StateAcoustic Neuroma AssociationAcoustic Neuroma Association
    Diabetes Management Program - Platte Valley Medical Center"Let's Talk Diabetes" offers classes to help individuals to better manage Diabetes or Prediabetes. Topic include: - Overview of Diabetes and Prediabetes - Blood Sugar Monitoring - Managing Diabetes with your diet - Meal planning techniques to fit your lifestyle - Medication management - Prevention of chronic diseases - Exercise and activity Weld CountyPlatte Valley Medical CenterPlatte Valley Medical Center
    Diabetes Services and Information (Denver Chapter) - American Diabetes AssociationResource and referral center to meet the needs of persons with diabetes and their families.Denver CountyDenver Chapter - American Diabetes AssociationAmerican Diabetes Association
    Disability/Medical Rehabilitation Information & Referral Services - The National Rehabilitation Information CenterProvide information and resources for disabilities and medical rehabilitation services.Out of StateThe National Rehabilitation Information CenterThe National Rehabilitation Information Center
    Disabled Adult Information & Referral Services - Independence CenterProvides information and referrals around local resources and community services for those with disabilities.El Paso CountyIndependence CenterIndependence Center
    Disabled Children & Family Services - Blue Peaks Developmental ServicesProvides service coordination for children who have or are at risk for developmental disabilities through several programs. Early Intervention Services can include therapies, assistive technology devices, family training and counseling, health services and social work services. The Children's Extensive Support program serves children with significant medical and/or behavioral needs and provides intensive supports that enable a parent to keep their child at home. The Family Support Services program assists families with costs beyond those normally experienced by other families without children with disabilities, and helps families avoid or delay costly out of home placements.Alamosa CountyBlue Peaks Developmental ServicesBlue Peaks Developmental Services
    Disabled Youth Information & Referral Services - Peak Parent CenterProvides information and referral services for disabled youth and their families.El Paso CountyPeak Parent CenterPeak Parent Center
    Educational Events - Crohn's & Colitis Foundation Rocky Mountain ChapterProvides educational events on topics related to Crohn's Disease or ulcerative colitis.Denver CountyCrohn's & Colitis Foundation Rocky Mountain ChapterCrohn's & Colitis Foundation Rocky Mountain Chapter
    Family Support and Information - Lighthouse Guild Parent Support NetworkProvides parents with information and support through a national toll-free number, and administers an international information and support network that links parents of children with similar eye conditions. Educational workshops and newsletters are also available.Out of StateLighthouse Guild Parent Support NetworkLighthouse Guild Parent Support Network
    Family Support - Batten Disease Support and Research AssociationSupport and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease. Provides information, education, medical referrals and assistance along with support.Out of StateHealth Care - Batten Disease Support and Research AssociationBatten Disease Support and Research Association (BDSRA)
    Fragile X Awareness and Support Groups - National Fragile X FoundationDistributes information about Fragile X Syndrome, provides information and referrals, educational materials, and a quarterly newsletter, and offers access to support groups for families.Out of StateNational Fragile X FoundationNational Fragile X Foundation
    General/Support Group Information - National Brain Tumor SocietyProvides individuals with general information on brain tumors and support groups in their area. Brain tumor support groups are filled with people who have been where patients are now – they have been diagnosed, gone through treatment, and are living as survivors. Out of StateNational Brain Tumor SocietyNational Brain Tumor Society
    Headache Information - National Headache FoundationDisseminates free information on headache causes and treatments, funds research, sponsors public education seminars nationwide, and offers a clearinghouse of headache-related information. A list of National Headache Foundation physician members is also available upon request.Out of StateNational Headache FoundationNational Headache Foundation
    Health Information - National Heart, Lung, and Blood Institute Health Information CenterProvides information on heart and lung disease, blood resources, sleep disorders, cardiovascular disease, risk prevention and treatments, and related topics.Out of StateNational Heart, Lung, and Blood Institute Health Information CenterNational Heart, Lung, and Blood Institute Health Information Center
    Health Information - National Institute on Deafness and Other Communication DisordersProvides health information and an information line on the following topics: - Ear infections in children - Specific language impairment - Noise-induced hearing loss - Balance disorders - Ménière’s disease - Speech and language developmental milestones - Taste disordersOut of StateNational Institute on Deafness and Other Communication DisordersNational Institute on Deafness and Other Communication Disorders
    HIV - AIDS Support (E 14th Pl) - Tri-County Health DepartmentProvides free and confidential services for individuals living with HIV/AIDS, including the following services: - blood draws for confirmatory testing (CD4 and viral load counts) - referrals to community resources and support services - assistance with financial assistance applications - assistance understanding lab results and treatment plansArapahoe CountyE 14 Pl - Tri-County Health DepartmentTri-County Health Department
    HPV Support Program - American Social Health Association-Accurate and up-to-date information about HPV and cervical cancer prevention and related issues such as screening, self-esteem, partners, and transmission. -Source for referrals such as local HPV support groups -Voice to increase the awareness of HPV and cervical cancer prevention through the mass media -Sponsor for medical research on HPV Out of StateIndividual and Family Life - American Social Health AssociationAmerican Sexual Health Association
    Huntington's Support - Huntington's Disease Society of AmericaProvides services for individuals affected by Huntington's Disease including: - Placement assistance - Financial planning - Resources - Monthly support groups - Counseling for individuals and their families - In-service trainings for nursing home staff - Community education - Genetic testing program - Information and referralJefferson CountyHuntington's Disease Society of America Rocky MountainHuntington's Disease Society of America Rocky Mountain
    Incontinence Information & Referral Services - The Simon Foundation for ContinenceProvides education as well as resource information for those with loss of bladder and bowel control.Out of StateThe Simon Foundation for ContinenceThe Simon Foundation for Continence
    Infant and Maternal Health Information (Denver) - March of DimesProvides community services, advocacy, medical services, and health education on birth defects and infant mortality, including online resources, lectures, and brochures.Denver CountyDenver - March of DimesMarch of Dimes
    Information and Support - Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)Provides education and support for children and adults with Attention-Deficit/Hyperactivity Disorder (ADHD), including: - National helpline with ADHD specialists - Online forum - Denver area support group (See Helpful Tips) - Electronic and print information about ADHD - Online Resource Directory of local providers in Colorado offering counseling, coaching, therapy, educational support, and other services - Training for Professionals - Community SupportOut of StateChildren and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
    Information and Support for Lymphoma Patients - Lymphoma Foundation of AmericaProvides information to lymphoma patients and families, including updates on research, new treatments, and patient rights, counseling from registered nurses over the phone, and referrals to other resources.Out of StateLymphoma Foundation of AmericaLymphoma Foundation of America
    Information - Liver Health ConnectionProvides information and support to people with Hepatitis C and their families. Programs include: - telephone consultation - information and referrals - testing - newsletters - patient information kits - educational seminars - training sessions for health care professionals and interested groups. Hepatitis-C Testing is free and confidential.Denver CountyLiver Health ConnectionLiver Health Connection
    Information & Support for Families Raising Disabled Children (Granby Cir) - Special Kids Special FamiliesProvides a forum where families raising children with special needs can learn about resources in the community as well as gain support and interact with other parents.El Paso CountyGranby Cir - Special Kids Special FamiliesSpecial Kids Special Families
    Kidney Disease Education and Services - National Kidney FoundationThe National Kidney Foundation's direct patient programs include: - KEEP Healthy kidney disease screenings - Your Kidneys and You educational presentations - NKF Cares and NKF Peers patient support hotlines - The Big Ask/The Big Give organ donation education initiative NKF also improves patient health and well-being through the development of widely-adopted clinical practice guidelines, professional education opportunities for those who care for kidney patients, research grants that support new treatment approaches, and advocacy efforts at the state and national level that focus on protecting patients and increasing investment in kidney disease prevention and research.Denver CountyNational Kidney FoundationNational Kidney Foundation
    Learning Disabilities Workshops - LEAD FoundationProvides workshops for high school students with learning disabilities and/or ADHD and their parents. These workshops are offered at little to no cost.El Paso CountyLEAD FoundationLEAD Foundation
    Lowe Syndrome Information - Lowe Syndrome AssociationPromotes communication among families affected by Lowe Syndrome, provides information, and encourages and supports research. Activities include: - Publications and Newsletters - Parent directory - Conferences - Medical research grantsOut of StateLowe Syndrome AssociationLowe Syndrome Association
    Lupus Information and Assistance - Lupus ColoradoProvide services for individuals with Lupus, their friends and family, including: - physician referrals - financial assistance (medical fee assistance, food, etc.) - individual advocacy - discount prescriptions - information and referral services - short-term counseling - support groupsArapahoe CountyLupus ColoradoLupus Colorado
    Multiple Sclerosis Information & Referral Services (Colorado Springs) - Multiple Sclerosis Alliance of Southern ColoradoProvides information and referral services for individuals newly diagnosed with Multiple Sclerosis and their families, or those facing changes in their disease. El Paso CountyColorado Springs - Multiple Sclerosis Alliance of Southern ColoradoMultiple Sclerosis Alliance of Southern Colorado
    Multiple Sclerosis Support Services - National Multiple Sclerosis Society Colorado-Wyoming ChapterProvides programs, services education and support to help individuals living with Multiple Sclerosis improve their quality of life. Services include: - Counseling - Care management - Peer support - Support groups - Health and wellness programs - Social and recreational programs - Limited financial assistance for MS related needs such as utility bills - Information and referral - Volunteer support - Practical and financial assistance - Educational ResourcesDenver CountyNational Multiple Sclerosis Society Colorado-Wyoming ChapterNational Multiple Sclerosis Society Colorado-Wyoming Chapter
    Myalgic Encephalmyelitis/Chronic Fatigue Syndrome Information & Referral Services - Wisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome AssociationProvides information and support to patients diagnosed with Myalgic Encephalmyelitis / Chronic Fatigue Syndrome and their families. The Association is dedicated to assisting patients & their families with ME/CFS & other neurological auto-immune disorders as well as Lyme disease.Out of StateWisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome AssociationWisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome Association
    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Information Services - Solve ME/CFS InitiativeProvides education and information around myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) – also known as chronic fatigue and immune dysfunction syndrome (CFIDS) or systemic exertion intolerance disease (SEID).Out of StateSolve ME/CFS InitiativeSolve ME/CFS Initiative
    Online Cancer Support (Colorado Springs) - American Cancer SocietyProvides an on-line community for cancer survivors and caregivers called the Cancer Survivor Network. Provides connections with others affected by cancer, discussion boards, chat rooms, personal web pages, private and secure messaging, resource library, e-newsletter, and moreEl Paso CountyColorado Springs - American Cancer SocietyAmerican Cancer Society
    Osteoporosis Information - National Osteoporosis FoundationProvides a variety of educational programs and resources to patients, their families, and health professionals regarding osteoporosis.Out of StateNational Osteoporosis FoundationNational Osteoporosis Foundation
    Patient Services - Arthritis FoundationProvides information, support groups, community events, and a national helpline staffed by social workers to address requests for physician referrals, medical advice, etc. for individuals with arthritis. The Arthritis Foundation local market covers Colorado and Wyoming.Denver CountyArthritis FoundationArthritis Foundation
    Patient Services - Leukemia and Lymphoma SocietyConducts research, provides patient financial assistance for drug co-pays and insurance premiums, public and professional education, family support groups, information resource materials, and assistance with insurance claims.Denver CountyLeukemia and Lymphoma SocietyLeukemia and Lymphoma Society
    Patient Services (Wagner Street) - Rocky Mountain Multiple Sclerosis (MS) CenterProvides support and services for individuals with Multiple Sclerosis and their families. - Educational seminars - Counseling services (patients, families, and caregivers) - Legal clinic (disability filing assistance) - InformationAdams CountyWagner Street - Rocky Mountain Multiple Sclerosis CenterRocky Mountain Multiple Sclerosis Center
    Patient Support Services - American Cancer SocietyProvides a website and hotline available 24 hours/7 days a week to assist patients through every step of a cancer diagnosis. Information and resources are available on a variety of topics, including: - Understanding a cancer diagnosis - Finding and paying for treatment - Treatments and side effects - Information and referral for support cancer patients - Children and cancer - Caregiver support - Transportation to cancer appointments (local and long distance) - Lodging program for cancer patients - Patient Navigation - Cancer Survivors online support group (Cancer Survivors Network)Denver CountyBreast Cancer Support - American Cancer SocietyAmerican Cancer Society
    Prostate Cancer Awareness - Prostate Conditions Education CouncilServes as a resource for information on prostate health through patient education, awareness programs, and connections to screening sites.Arapahoe CountyProstate Conditions Education CouncilProstate Conditions Education Council
    Psoriasis Information - National Psoriasis FoundationOffers specially-trained patient navigators that provide free one-on-one guidance to individuals impacted by psoriasis and psoriatic arthritis; patient and caregiver educational resources and programs; and connections with others living with psoriatic disease.Out of StateNational Psoriasis FoundationNational Psoriasis Foundation
    Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)Offers a clearinghouse of information on rare diseases to individuals, medical professionals, libraries, educators, and corporations. Also provides the following: - Advocacy - Referrals to patients and families for assistance and support - A confidential patient registry - Networking program for members - Information about starting support groups - A biannual newsletter for membersOut of StateNational Organization for Rare Disorders (NORD)National Organization for Rare Disorders (NORD)
    Resources for Individuals with Cystic Fibrosis - Cystic Fibrosis FoundationConducts research and fundraising activities, provides educational programs, and information and referrals to people with cystic fibrosis and their families.Denver CountyCystic Fibrosis FoundationCystic Fibrosis Foundation
    Retinal Disease Information & Referral Services - The Foundation Fighting BlindnessOffers information and referral services for those living with retinal diseases.Out of StateThe Foundation Fighting BlindnessThe Foundation Fighting Blindness
    Rett Syndrome Clinic (Colorado) - Rettsyndrome.orgThe Children's Hospital Colorado understands the diagnostic criteria of Rett syndrome and related disorders, and is dedicated to identifying the multiple needs of those diagnosed with the disorder. Contact the clinic directly to schedule an appointment and discuss payment options and insurance coverage.Douglas CountyRett Syndrome Clinic (Colorado) - Rettsyndrome.orgRettsyndrome.org
    Scleroderma Information (Denver) - Scleroderma FoundationThe Scleroderma Foundation offers the following tools and resources in support of people living with scleroderma and their families: Has a nationwide network of 20 active chapters and more than 160 support groups Staff a toll-free helpline providing information and referrals to callers Publish a quarterly magazine called "Scleroderma Voice" Offer a variety of brochures, booklets and newsletters, along with our informative websiteDenver CountyDenver - Scleroderma FoundationScleroderma Foundation
    Services for Individuals with Disabilities - Connections for Independent LivingOffers a variety of services to individuals with disabilities including: - Advocacy in order to obtain access to benefits and services - Information and referral to other resources - Peer support - Independent living skills training (e.g., personal care, coping, financial management, social skills, household management) - Finding and retaining employment (e.g., job search techniques, resume writing, interviewing skills, computer skills) - Identifying resources and support systems transitioning (e.g., nursing homes to independent living, or the community-at-large and youth transition needs) - Support groups (i.e., Traumatic Brain Injury, Women, Low-Vision, Coloring, Veterans, Bingo)Weld CountyConnections for Independent LivingConnections for Independent Living
    Smoking and Lung Disease Classes - American Lung Association in ColoradoProvides educational classes and programs on quitting smoking, managing asthma, and coping with Chronic Obstructive Pulmonary Disease.Arapahoe CountyAmerican Lung Association in ColoradoAmerican Lung Association in Colorado
    Stroke Education - Rocky Mountain Stroke CenterInformation and resources are provided on stroke prevention, treatment, rehabilitation, care giving issues, and stroke support groups.Arapahoe CountyRocky Mountain Stroke CenterRocky Mountain Stroke Center
    Sturge-Weber Syndrome Information & Referral Services - Sturge-Weber FoundationProvides information and support to individuals and families affected by Sturge-Weber Syndrome, educates the public about Sturge-Weber Syndrome, and facilitates research. Also provides help to families with Klippel-Trenaunay and Port Wine Stains.Out of StateSturge-Weber FoundationSturge-Weber Foundation
    Sudden Death Counseling and Support - Angel EyesOffers awareness and educational services throughout Colorado, focusing on Sudden Infant Death Syndrome (SIDS), Sudden Unexpected Infant Death Syndrome (SUID), and Sudden Unexplained Death in Childhood (SUDC) and risk reduction. Assists all who have been impacted by the sudden, unexpected loss of an infant or toddler, including miscarriage and stillbirth with bereavement support groups, counseling, and child play therapy for siblings.Denver CountyAngel EyesAngel Eyes
    Sudden Infant Death Syndrome - Pueblo Department of Public Health and EnvironmentProvides follow-up, information/education, referrals to families, extended families, and others when a SIDS death occurs. Coordinates services with the Colorado SIDS Center and provides educational presentations on SIDS upon request.Pueblo CountyPueblo Department of Public Health and EnvironmentPueblo Department of Public Health and Environment
    Support Services for Individuals with Down Syndrome - Rocky Mountain Down Syndrome AssociationServes families of children and adults with Down syndrome, and interested professionals in the Mountain States region by providing the following services: - Peer and community support - Support groups - Information and referral services - Social activities and continuing education programs for adults with Down syndromeDenver CountyRocky Mountain Down Syndrome AssociationRocky Mountain Down Syndrome Association
    Support Services - Muscular Dystrophy AssociationProvides free, comprehensive services such as diagnostic testing, genetic counseling, follow-up clinics, orthopedic aids, and physical and occupational therapy to individuals who have neuromuscular diseases and their families.Denver CountyMuscular Dystrophy AssociationMuscular Dystrophy Association
    Support Services - Sickle Cell Disease Association of America (Denver)Provides educational resources, sickle cell trait counseling, health care referrals, and support for blood drives for people with sickle cell anemia.Denver CountySickle Cell Disease Association of America (Denver)Colorado Sickle Cell Association, Inc
    Thalassemia Information - Cooley's Anemia Foundation, Inc.Provides general information on various forms of thalassemia, a genetic blood disorder, mostly commonly Cooley's anemia/thalassemia major. Support includes: - Publications - Information on Clinical Trials - List of Treatment Centers - Social Media Support Pages - Annual Conference for Patients & Families - Patient ServicesOut of StateCooley's Anemia Foundation, Inc.Cooley's Anemia Foundation
    The Infantile Scoliosis Outreach Program (ISOP) - Ability Connection ColoradoConnects families of children with progressive infantile scoliosis to resources and information needed to make the best and least invasive decision. Denver CountyAbility Connection ColoradoAbility Connection Colorado
    Tuberous Sclerosis Information & Support - Tuberous Sclerosis AllianceProvides support and information for those who have been diagnosed with Tuberous Sclerosis Complex (TSC).Out of StateTuberous Sclerosis AllianceTuberous Sclerosis Alliance

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