Disease/Disability Information

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    The structure of the services index and definitions of the terms contained herein were orginally published in A Taxonomy of Human Services: A Conceptual Framework with Standardized Terminology and Definitions for the Field by the Information and Refferal Federation of Los Angeles County, Inc., 3035 Tyler Ave, El Monte, CA 91731; Copyright (c) 1983, 1987, 1991. No part of there listing of human service terms and definitions may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electrical, mechanical, photocopying, recording or otherwise without the prior written permission of the Information and Referral Federation of Los Angeles County, Inc.

    Taxonomy Code: LH-2700.1700

    Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions.

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    There are 69 matching records.
    Service NameDescriptionLocationProgramAgency
    Alzheimer's Association - Western SlopeOffering: - One-on-one Care Consults in person and over the phone, including referrals, resources, information, education, troubleshooting, and follow-up. - Education classes from recognizing the warning signs, through end of life care, as well as legal and financial planning and healthy living. - Support Groups for caregivers and persons with dementia or Alzheimer's. - Information resources - 24-hour Helpline (800) 272-3900 Mesa CountyWestern Slope - Alzheimer's AssociationAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Denver) - Alzheimer's Association Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.Denver CountyDenver - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Fort Collins) - Alzheimer's Association Colorado ChaptersProvides education, support and connections to resources for persons with Alzheimer Disease and other dementias, as well as their families and caregivers. Information on local support groups also available (See Helpful Tips below).Larimer CountyFort Collins - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Louisville) - Alzheimer's Association Colorado ChaptersProvides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources.Boulder CountyLouisville - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Northeast Colorado/Greeley) - Alzheimer's Association Colorado ChaptersProvides support, education, and resources to persons with Alzheimer's or Dementia, their caregivers, and family members,Weld CountyNortheast Colorado/Greeley - Alzheimer's Association Colorado ChaptersAlzheimer's Association Colorado Chapters
    Alzheimer's Resources (Pueblo/Southern Colorado) - Alzheimer's Association Colorado ChaptersOffers a variety of services to persons with Alzheimer's or Dementia and their caregivers or family members, including: - The Safe Return Program; a nationwide system to help identify, locate, and return inidviduals who are memory impaired due to Alzheimer's disease or a related disorder to safety - Support group meetings for persons with Alzheimer's and their family or caregivers - A helpline provides telephone information, support, and referrals in Southern Colorado - Family Options Counseling - Community education workshopsPueblo CountyPueblo/Southern Colorado - Alzheimer's ResourcesAlzheimer's Association Colorado Chapters
    American Sexual Health Association- STD research; public policy; educational pamphlets. - Herpes Resource Center, which provides Herpes information via the Helper newsletter, books, audio and video tapes, and pamphlets. - Herpes and HPV support groups; HPV support program, which provides information via pamphlets and the HPV News journal; information hotlines - CDC National STD and AIDS hotlines.Out of StateOrganizational/Community/International Services - American Social Health AssociationAmerican Sexual Health Association
    Ataxia Information and Support - National Ataxia FoundationProvides information, referrals to neurologists, a newsletter, support groups, an annual conference, and a pen pal program for ataxia families to connect.Out of StateNational Ataxia FoundationNational Ataxia Foundation
    Autism Information and Support - Autism Society of ColoradoOffers a variety of events, activities and information services which include: - Autism Navigation Center for information, referrals, advocacy and support throughout every stage through in-office visits and support groups - Community outings such as Autism Family Pizza Night at Beau Jo's and other activities - Autism 101, an introduction to understanding autism for community groups or organizations - In-depth topical presentations for adults and caregivers - Certified application assistance for Medicaid, Medicaid Buy-In, and CHP+ Jefferson CountyAutism Society of ColoradoAutism Society of Colorado
    Autism Information - Autism SpeaksThe website provides information on the following: Family Services Advocacy Research Events - Walk information Merchandise Partners Resource Guide Tool Kits Autism Apps Out of StateAutism SpeaksAutism Speaks
    Blind Services - American Action Fund for Blind Children & Adults (AAF)The American Action Fund for Blind Children and Adults is a service agency which specializes in providing blind people help, which is not readily available to them from government programs or other existing service systems. The services of the American Action Fund for Blind Children and Adults are planned especially to meet the needs of blind children, the elderly blind, and the deaf-blind.Out of StateOrganizational/Community/International Services - American Action Fund for Blind Children & AdultsAmerican Action Fund for Blind Children and Adults
    Cancer Information - National Cancer InstituteProvides confidential answers to specific questions about cancer, and assistance to smokers who want to quit.Out of StateNational Cancer InstituteNational Cancer Institute
    Cancer Survivors Network (Colorado Springs) - American Cancer SocietyOn-line community for cancer survivors and caregivers. Offers connections with others affected by cancer, discussion boards, chat rooms, personal web pages, private and secure messaging, resource library, e-newsletter and moreEl Paso CountyColorado Springs - American Cancer SocietyAmerican Cancer Society - Nationwide
    Cleft Lip and Cleft Palate Information - Pueblo City-County Health DepartmentProvides education and information on cleft lip and/or cleft palate, including feeding, obtaining needed equipment, accessing insurance, and medical care.Pueblo CountyCleft Lip/PalatePueblo City-County Health Department
    Community Health (Central Park Dr) - Northwest Colorado HealthOffers public and community health services, including the following: Community Health Centers: - Primary care - Preventative dental services - Behavioral health support - Sexually transmitted infection screenings - Women’s health services Public Health: - Aging Well programs for older adults - Cardiovascular and diabetes screenings and prevention programs - Emergency Preparedness - Health insurance assistance - Nurse-Family Partnership - Tobacco cessation support - Youth Resiliency programs for individuals who are grieving - Investigations related to communicable diseaseRoutt CountyCentral Park Dr - Northwest Colorado HealthNorthwest Colorado Health
    Community Health (Russell St) - Northwest Colorado HealthOffers public and community health services, including the following: Community Health Centers: - Primary care - Preventative dental services - Behavioral health support - Sexually transmitted infection screenings - Women’s health services Public Health: - Aging Well programs for older adults - Cardiovascular and Diabetes screenings and prevention programs - Emergency Preparedness - Health insurance assistance - Nurse-Family Partnership - Tobacco cessation support - Youth Resiliency programs for individuals who are grieving - Investigations related to communicable diseaseMoffat CountyRussell St - Northwest Colorado HealthNorthwest Colorado Health
    Diabetes Prevention Program - Center for African American HealthThe Live Well for Life diabetes prevention program focuses on the 4 areas of diabetes prevention: healthy eating, physical activity, group support and lifestyle coaching. The program is 22 weeks long, consisting of one hour seminars in the evening.Denver CountyCenter for African American HealthCenter for African American Health
    Diabetes Services and Information (Denver Chapter) - American Diabetes AssociationResource and referral center to meet the needs of persons with diabetes and their families.Denver CountyDenver Chapter - American Diabetes AssociationAmerican Diabetes Association
    Disabled Children & Family Services - Blue Peaks Developmental ServicesProvides service coordination for children who have or are at risk for developmental disabilities through several programs. Early Intervention Services can include therapies, assistive technology devices, family training and counseling, health services and social work services. The Children's Extensive Support program serves children with significant medical and/or behavioral needs and provides intensive supports that enable a parent to keep their child at home. The Family Support Services program assists families with costs beyond those normally experienced by other families without children with disabilities, and helps families avoid or delay costly out of home placements.Alamosa CountyBlue Peaks Developmental ServicesBlue Peaks Developmental Services
    Educational Events - Crohn's & Colitis Foundation Rocky Mountain ChapterProvides educational events on topics related to Crohn's Disease or ulcerative colitis.Denver CountyCrohn's & Colitis Foundation Rocky Mountain ChapterCrohn's & Colitis Foundation Rocky Mountain Chapter
    Education and Resources - Solve ME/CFS InitiativeSolve ME/CFS Initiative provides online education around Myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS). They also provide online resource information for those who are experiencing ME/CFS and their families/medical providers. Go online or call for more information.Out of StateSolve ME/CFS InitiativeSolve ME/CFS Initiative
    Education, Resources & Referrals - Cerebral Palsy Association of Colorado SpringsProvides education around cerebral palsy to schools, families, and individuals. Also provides resource and referral information for those with cerebral palsy and their families.El Paso CountyCerebral Palsy Association of Colorado SpringsCerebral Palsy Association of Colorado Springs
    Education & Resources - Sturge-Weber FoundationThe Sturge-Weber Foundation provides information and support to individuals and families affected by Sturge-Weber Syndrome, educates the public about Sturge-Weber Syndrome, and facilitates research. Also provides help to families with Klippel-Trenaunay and Port Wine Stains. Call or go online for more information.Out of StateSturge-Weber FoundationSturge-Weber Foundation
    Family Support and Information - National Association of Parents of Children with Visual Impairments (NAPVI)Provides parents with information and support through a national toll-free number, and administers an international information and support network that links parents of children with similar eye conditions. Educational workshops, conferences, and publications are also available.Out of StateNational Association of Parents of Children with Visual Impairments (NAPVI)National Association of Parents of Children with Visual Impairments (NAPVI)
    Family Support - Batten Disease Support and Research Association (BDSRA)International support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease. We provide information, education, medical referrals and assistance along with support.Out of StateHealth Care - Batten Disease Support and Research Association (BDSRA)Batten Disease Support and Research Association (BDSRA)
    Fragile X Awareness and Support Groups - National Fragile X FoundationDistributes information about Fragile X Syndrome, provides information and referrals, educational materials, and a quarterly newsletter, and offers access to support groups for families.Out of StateNational Fragile X FoundationNational Fragile X Foundation
    General/Support Group Information - National Brain Tumor SocietyProvides individuals with general information on brain tumors and support groups in their area. Brain tumor support groups are filled with people who have been where patients are now – they have been diagnosed, gone through treatment, and are living as survivors. Out of StateNational Brain Tumor SocietyNational Brain Tumor Society
    Headache Information - National Headache FoundationDisseminates free information on headache causes and treatments, funds research, sponsors public education seminars nationwide, and offers a clearinghouse of headache-related information. A list of National Headache Foundation physician members is also available upon request.Out of StateNational Headache FoundationNational Headache Foundation
    Health Information - National Heart, Lung, and Blood Institute Health Information CenterProvides information on heart and lung disease, blood resources, sleep disorders, cardiovascular disease, risk prevention and treatments, and related topics.Out of StateNational Heart, Lung, and Blood Institute Health Information CenterNational Heart, Lung, and Blood Institute Health Information Center
    Health Information - National Institute on Deafness and Other Communication DisordersProvides health information and an information line on the following topics: - Ear infections in children - Specific language impairment - Noise-induced hearing loss - Balance disorders - Ménière’s disease - Speech and language developmental milestones - Taste disordersOut of StateNational Institute on Deafness and Other Communication DisordersNational Institute on Deafness and Other Communication Disorders
    HIV Linkage to Care (E 14th Pl) - Tri-County Health DepartmentProvides free and confidential services for individuals living with HIV/AIDS, including the following services: - blood draws for confirmatory testing (CD4 and viral load counts) - referrals to community resources and support services - assistance with financial assistance applications - assistance understanding lab results and treatment plansArapahoe CountyE 14 Pl - Tri-County Health DepartmentTri-County Health Department
    HPV Support Program - American Social Health Association-Accurate and up-to-date information about HPV and cervical cancer prevention and related issues such as screening, self-esteem, partners, and transmission. -Source for referrals such as local HPV support groups -Voice to increase the awareness of HPV and cervical cancer prevention through the mass media -Sponsor for medical research on HPV Out of StateIndividual and Family Life - American Social Health AssociationAmerican Sexual Health Association
    Huntington's Support - Huntington's Disease Society of AmericaProvides services for individuals affected by Huntington's Disease including: - Placement assistance - Financial planning - Resources - Monthly support groups - Counseling for individuals and their families - In-service trainings for nursing home staff - Community education - Genetic testing program - Information and referralJefferson CountyHuntington's Disease Society of America Rocky MountainHuntington's Disease Society of America Rocky Mountain
    Incontinence Information - Continence RestoredDisseminates information over the phone, via mail, or email on urinary incontinence to individuals with bladder control problems, their families and friends, and individuals interested in bladder control. Also provides assistance in establishing Continence Restored support groups and helps individuals find existing support groups.Out of StateContinence RestoredContinence Restored
    Infant and Maternal Health Information (Denver) - March of DimesProvides community services, advocacy, funding, medical services, and health education on birth defects and infant mortality, including free films, lectures, and brochures.Denver CountyDenver - March of DimesMarch of Dimes Foundation
    Information and Support - Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)Provides education and support for children and adults with Attention-Deficit/Hyperactivity Disorder (ADHD), including: - National helpline with ADHD specialists - Online forum - Denver area support group (See Helpful Tips) - Electronic and print information about ADHD - Online Resource Directory of local providers in Colorado offering counseling, coaching, therapy, educational support, and other services - Training for Professionals Out of StateChildren and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
    Information and Support for Lymphoma Patients - Lymphoma Foundation of AmericaProvides information to lymphoma patients and families, including updates on research, new treatments, and patient rights, counseling from registered nurses over the phone, and referrals to other resources.Out of StateLymphoma Foundation of AmericaLymphoma Foundation of America
    Information - Liver Health ConnectionProvides information and support to people with Hepatitis C and their families. Programs include: telephone consultation, information and referrals, testing, newsletters, patient information kits, educational seminars, training sessions for health care professionals and interested groups. Hepatitis-C Testing is free and confidential.Denver CountyLiver Health ConnectionLiver Health Connection
    Information & Support - Special Kids Special FamiliesProvides a forum where families raising children with special needs can learn about resources in the community as well as gain support and interact with other parents. Call for information about the next meeting date and time.El Paso County4795 Granby Cir - Special Kids Special FamiliesSpecial Kids Special Families
    Kidney Disease Education and Services - National Kidney FoundationThe National Kidney Foundation's direct patient programs include: - KEEP Healthy kidney disease screenings - Your Kidneys and You educational presentations - NKF Cares and NKF Peers patient support hotlines - The Big Ask/The Big Give organ donation education initiative NKF also improves patient health and well-being through the development of widely-adopted clinical practice guidelines, professional education opportunities for those who care for kidney patients, research grants that support new treatment approaches, and advocacy efforts at the state and national level that focus on protecting patients and increasing investment in kidney disease prevention and research.Denver CountyNational Kidney FoundationNational Kidney Foundation
    Learning Disabilities Workshops - LEAD FoundationWorkshops for high school students with learning disabilities and/or ADHD and their parents. These workshops are offered at little to no cost.El Paso CountyLEAD FoundationLEAD Foundation
    Lowe Syndrome Information - Lowe Syndrome AssociationPromotes communication among families affected by Lowe Syndrome, provides information, and encourages and supports research. Activities include: - Publications and Newsletters - Parent directory - Conferences - Medical research grantsOut of StateLowe Syndrome AssociationLowe Syndrome Association
    Lupus Information and Assistance - Lupus ColoradoProvide services for individuals with Lupus, their friends and family, including: - physician referrals - financial assistance (medical fee assistance, food, etc.) - individual advocacy - discount prescriptions - information and referral services - short-term counseling - support groupsArapahoe CountyLupus ColoradoLupus Colorado
    Mental Illness Support - National Alliance on Mental Illness (NAMI) Weld ChapterOffers regularly scheduled meetings that provide education and support for individuals mental illnesses, family members, professionals and other interested supporters. Also offers volunteer opportunities.Weld CountyNational Alliance on Mental Illness (NAMI) Weld ChapterNational Alliance on Mental Illness (NAMI) Weld Chapter
    Multiple Sclerosis Support - National Multiple Sclerosis Society, Colorado-Wyoming ChapterPrograms and services include self-help/support groups, education, wellness and social groups, care management, advocacy, financial assistance, and information and referral provided by a call center. An equipment loan program is available in Southern Colorado, where durable medical equipment can be loaned out for a designated period of time.Denver CountyNational Multiple Sclerosis Society, Colorado-Wyoming ChapterNational Multiple Sclerosis Society, Colorado-Wyoming Chapter
    Osteoporosis Information - National Osteoporosis FoundationProvides a variety of educational programs and resources to patients, their families, and health professionals regarding osteoporosis.Out of StateNational Osteoporosis FoundationNational Osteoporosis Foundation
    Parent Training & Information Center - Peak Parent CenterThe purpose of the Parent Training and Information (PTI) project is to provide Colorado parents, self-advocates, and family members with high quality information and training so that they can become lifelong advocates for their children and themselves. Call or email a PEAK Parent Advisor for information and assistance.El Paso CountyPeak Parent CenterPeak Parent Center
    Patient Services - Arthritis FoundationProvides information, support groups, community events, and a national helpline staffed by social workers to address requests for physician referrals, medical advice, etc. for individuals with arthritis.Denver CountyArthritis FoundationArthritis Foundation
    Patient Services - Leukemia and Lymphoma SocietyConducts research, provides patient financial assistance for drug co-pays and insurance premiums, public and professional education, family support groups, information resource materials, and assistance with insurance claims.Denver CountyLeukemia and Lymphoma SocietyLeukemia and Lymphoma Society
    Patient Services (Wagner Street) - Rocky Mountain Multiple Sclerosis (MS) CenterProvides support and services for individuals with Multiple Sclerosis and their families. - Educational seminars - Counseling services (patients, families, and caregivers) - Legal clinic (disability filing assistance) - InformationAdams CountyWagner Street - Rocky Mountain Multiple Sclerosis CenterRocky Mountain Multiple Sclerosis Center
    Pregnancy Resource Center - Waypoints Faith CommunityProvides free services and materials for individuals experiencing an unplanned pregnancy. Advisers are available to discuss options, and provide information about pregnancy, sexually transmitted diseases, abortion, adoption, parenting and pregnancy resources.Weld CountyWaypoints Faith CommunityWaypoints Faith Community
    Prostate Cancer Awareness - Prostate Conditions Education CouncilServes as a resource for information on prostate health, through patient education, awareness programs and connections to screening sites.Arapahoe CountyProstate Conditions Education CouncilProstate Conditions Education Council
    Psoriasis Information - National Psoriasis FoundationOffers specially-trained patient navigators that provide free one-on-one guidance to individuals impacted by psoriatic disease and psoriatic arthritis; patient and caregiver educational resources and programs; and connections with others living with psoriatic disease.Out of StateNational Psoriasis FoundationNational Psoriasis Foundation
    Public Awareness - Acoustic Neuroma AssociationThe Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.Out of StateAcoustic Neuroma AssociationAcoustic Neuroma Association
    Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)Offers a clearinghouse of information on rare diseases to individuals, medical professionals, libraries, educators, and corporations. Also provides the following: - Advocacy - Referrals to patients and families for assistance and support - A confidential patient registry - Networking program for members - Information about starting support groups - A biannual newsletter for membersOut of StateNational Organization for Rare Disorders (NORD)National Organization for Rare Disorders (NORD)
    Resources for Individuals with Cystic Fibrosis - Cystic Fibrosis FoundationConducts research and fundraising activities, provides educational programs, and information and referrals to people with cystic fibrosis and their families.Denver CountyCystic Fibrosis FoundationCystic Fibrosis Foundation
    Rett Syndrome Clinic (Colorado) - Rettsyndrome.orgThe Children's Hospital Colorado understands the diagnostic criteria of Rett syndrome and related disorders, and is dedicated to identifying the multiple needs of those diagnosed with the disorder. Contact the clinic directly to schedule an appointment and discuss payment options and insurance coverage.Douglas CountyRett Syndrome Clinic (Colorado) - Rettsyndrome.orgRettsyndrome.org
    Scleroderma Information (Denver) - Scleroderma FoundationThe Scleroderma Foundation offers the following tools and resources in support of people living with scleroderma and their families: Has a nationwide network of 20 active chapters and more than 160 support groups Staff a toll-free helpline providing information and referrals to callers Publish a quarterly magazine called "Scleroderma Voice" Offer a variety of brochures, booklets and newsletters, along with our informative websiteDenver CountyDenver - Scleroderma FoundationScleroderma Foundation
    Smoking and Lung Disease Classes - American Lung Association in ColoradoProvides educational classes and programs on quitting smoking, managing asthma, and coping with Chronic Obstructive Pulmonary Disease.Arapahoe CountyAmerican Lung Association in ColoradoAmerican Lung Association in Colorado
    Stroke Education - Rocky Mountain Stroke CenterInformation and resources are provided on stroke prevention, treatment, rehabilitation, care giving issues, and stroke support groups.Arapahoe CountyRocky Mountain Stroke CenterRocky Mountain Stroke Center
    Sudden Death Counseling and Support - Angel EyesOffers awareness and educational services throughout Colorado, focusing on Sudden Infant Death Syndrome (SIDS), Sudden Unexpected Infant Death Syndrome (SUID), and Sudden Unexplained Death in Childhood (SUDC) and risk reduction. Assists all who has been impacted by the sudden, unexpected loss of an infant or toddler, including miscarriage and stillbirth with bereavement support groups, counseling, and child play therapy for siblings.Denver CountyAngel EyesAngel Eyes
    Sudden Infant Death Syndrome - Pueblo City-County Health DepartmentProvides follow-up, information/education, referrals to families, extended families, and others when a SIDS death occurs. Coordinates services with the Colorado SIDS Center and provides educational presentations on SIDS upon request.Pueblo CountySudden Infant Death Syndrome (SIDS)Pueblo City-County Health Department
    Support & Education - Tuberous Sclerosis Alliance (TSA)Provides support and information for those who have been diagnosed with Tuberous Sclerosis Alliance (TSC). Call for more information.Out of StateTuberous Sclerosis Alliance (TSA)Tuberous Sclerosis Alliance (TSA)
    Support Groups and Classes / Connections for Independent LivingWe offer a variety of opportunities for support and education. .Weld CountyConnections for Independent LivingConnections for Independent Living
    Support Services for Individuals with Down Syndrome - Rocky Mountain Down Syndrome AssociationServes families of children and adults with Down syndrome, and interested professionals in the Mountain States region by providing the following services: - Peer and community support - Support groups - Information and referral services - Social activities and continuing education programs for adults with Down syndromeDenver CountyRocky Mountain Down Syndrome AssociationRocky Mountain Down Syndrome Association
    Support Services - Muscular Dystrophy AssociationProvides free, comprehensive services such as diagnostic testing, genetic counseling, follow-up clinics, orthopedic aids, and physical and occupational therapy to individuals who have neuromuscular diseases and their families.Denver CountyMuscular Dystrophy AssociationMuscular Dystrophy Association
    Support Services - Sickle Cell Disease Association of America (Denver)Provides educational resources, sickle cell trait counseling, health care referrals, and support for blood drives for people with sickle cell anemia.Denver CountySickle Cell Disease Association of America (Denver)Colorado Sickle Cell Association, Inc
    Thalassemia Information - Cooley's Anemia Foundation, Inc.Dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major. Provides funding for medical research to advance treatment and curative approaches, by supporting and advising patients and their families and advocating on their behalf and by educating medical professionals and the general public.Out of StateCooley's Anemia Foundation, Inc.Cooley's Anemia Foundation
    The Infantile Scoliosis Outreach Program (ISOP) - Ability Connection ColoradoConnects families of children with progressive infantile scoliosis to resources and information needed to make the best and least invasive decision. Denver CountyAbility Connection ColoradoAbility Connection Colorado

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