Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)
Data Provided By
Mile High United Way - MHUW
Description of Service
Offers a clearinghouse of information on rare diseases to individuals, medical professionals, libraries, educators, and corporations. Also provides the following:
- Referrals to patients and families for assistance and support
- A confidential patient registry
- Networking program for members
- Information about starting support groups
- A biannual newsletter for members
Out of State
Limited, call for specific information
Call or visit the website for more information.
Anyone seeking information on rare disorders
Fees or Charges
Types of Fees
Call for current fees.
Two Rare Disease Reports can be ordered daily online at no charge.