Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD)

 
Data Provided By
Mile High United Way - MHUW
General Information
Description of ServiceOffers a clearinghouse of information on rare diseases to individuals, medical professionals, libraries, educators, and corporations. Also provides the following:
- Advocacy
- Referrals to patients and families for assistance and support
- A confidential patient registry
- Networking program for members
- Information about starting support groups
- A biannual newsletter for members
LocationOut of State
Geographical AreaNationwide, Statewide
Facility/ADA AccessLimited, call for specific information
Intake ProcedureCall or visit the website for more information.
 
Client Information
GenderEither
EligibilityAnyone seeking information on rare disorders
 
Fees or Charges
Types of FeesSubscription Fees
Fee AmountsCall for current fees.
Payment NotesTwo Rare Disease Reports can be ordered daily online at no charge.
 
Availability
Hours of Operation Monday - Thursday, 9 a.m. - 8 p.m.; Friday, 9 a.m. - 6 p.m. (EST)
Contact Information
 
Contact's Phone 1-800-999-6673 (Patient Services)
Physical Site Address 1 55 Kenosia Ave
Physical Site City, State, Zip Danbury, CT 06810
Main Phone 1-800-999-6673 (Patient Services)
Other Phone (203) 744-0100 (Administration)
Fax (203) 263-9938
Web Address www.rarediseases.org
 
Additional Information
SourceMHUW
 
 
Affiliated Agency, Programs, and Services
Affiliated Agency: National Organization for Rare Disorders (NORD)
Affiliated Program: National Organization for Rare Disorders (NORD)
This Service: Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)
 
Taxonomy Postings
Posted to Categories: Disease/Disability Information (LH-2700.1700)