National Organization for Rare Disorders (NORD)

Data Provided By
Mile High United Way Mile High United Way - MHUW
General Information
Description of ProgramProvides information on rare diseases, peer networking, community service referrals, patient medication assistance, research, and advocacy for over 25 million people with rare disorders.
LocationOut of State
Geographic AreaNationwide, Statewide
Facility/ADA AccessLimited, call for specific information
Intake ProcedureCall or visit the website for more information.
Client Information
EligibilityAnyone seeking information on rare disorders
Fees or Charges
Types of FeesNone
Hours of OperationMonday - Thursday, 9 a.m. - 8 p.m.; Friday, 9 a.m. - 6 p.m. (EST)
Contact Information
Contact's Phone1-800-999-6673 (Patient Services)
Physical Site Address 155 Kenosia Ave
Physical Site City, State, ZipDanbury, CT 06810
Main Phone1-800-999-6673 (Patient Services)
Other Phone(203) 744-0100 (Administrative)
Fax(203) 263-9938
Director Information
Director's NamePeter Saltonstall
Director's PositionPresident/CEO
Additional Information
Affiliated Agency and Services
Affiliated Agency:
National Organization for Rare Disorders (NORD)
This Program: National Organization for Rare Disorders (NORD)
Affiliated Services: Medication and Financial Assistance - National Organization for Rare Disorders (NORD)
Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)