Lowe Syndrome Association

 
Data Provided By
Mile High United Way Mile High United Way - MHUW
General Information
Description of AgencyPromotes communication among families affected by Lowe Syndrome, provides information, and encourages and supports research. Activities include:
- Publications and Newsletters
- Parent directory
- Conferences
- Medical research grants
MissionTo promote communication among families affected by Lowe Syndrome, provide information, and encourage and support research.
HistoryFounded 1983 and incorporated in 1986.
LocationOut of State
Geographic AreaNationwide, Statewide
Facility/ADA AccessLimited, call for specific information
Intake ProcedureCall, visit the website, or email for more information.
Agency TypeNonprofit
 
Client Information
EligibilityIndividuals and families affected by Lowe Syndrome
 
Availability
Hours of OperationMonday - Friday, 8 a.m. - 6 p.m. (CST)
 
Contact Information
Contact's NameChristine Knight
Contact's PositionDirector of Medical and Scientific Advisory Board
Physical Site Address 1No Physical Address
Mailing Address 1PO Box 417
Mailing City, State, ZipChicago Ridge, IL 60415-9623
Main Phone(216) 630-7723
Emailinfo@lowesyndrome.org
Web Addresswww.lowesyndrome.org
 
Director Information
Director's NameLisa Waldbaum
Director's PositionPresident
 
Additional Information
Date Agency Entered12/18/1998
SourceMHUW
 
Affiliated Programs and Services
This Agency: Lowe Syndrome Association
Affiliated Programs: Lowe Syndrome Association
Affiliated Services: Lowe Syndrome Information - Lowe Syndrome Association