Offers a support group to persons affected by neurofibromatosis as well as information and referrals, which can be provided in-person, by mail, or by phone. Also provides new patient information at the neurofibromatosis clinic at Children's Hospital.
The mission of The Children's Tumor Foundation is to:
- Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF");
- Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information.
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Persons with neurofibromatosis and their families and friends.