National Organization for Rare Disorders (NORD)

 
Data Provided By
Mile High United Way Mile High United Way - MHUW
General Information
Description of AgencyProvides information on rare diseases, peer networking, community service referrals, patient medication assistance, research, and advocacy for over 25 million people with rare disorders.
MissionA patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
HistoryNORD was established in 1983 by patients and families who worked together to get the Orphan Drug Act passed. This legislation provides financial incentives to encourage development of new treatments for rare diseases.
LocationOut of State
Geographic AreaNationwide, Statewide
Facility/ADA AccessLimited, call for specific information
Intake ProcedureCall or visit the website for more information.
Agency TypeNonprofit
 
Client Information
EligibilityAnyone seeking information on rare disorders
 
Availability
Hours of OperationMonday - Thursday, 9 a.m. - 8 p.m.; Friday, 9 a.m. - 6 p.m. (EST)
 
Contact Information
Physical Site Address 155 Kenosia Ave
Physical Site City, State, ZipDanbury, CT 06810
Main Phone1-800-999-6673 (Patient Services)
Other Phone(203) 744-0100 (Administrative)
Fax(203) 263-9938
Web Addresswww.rarediseases.org
 
Director Information
Director's NamePeter Saltonstall
Director's PositionPresident/CEO
 
Additional Information
Date Agency Entered01/25/1996
SourceMHUW
 
Affiliated Programs and Services
This Agency: National Organization for Rare Disorders (NORD)
Affiliated Programs: National Organization for Rare Disorders (NORD)
Affiliated Services: Medication and Financial Assistance - National Organization for Rare Disorders (NORD)
Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD)