Sponsors scientific research, as well as providing patient education, information and referrals to qualified professionals, public education programs and information, and peer support groups for persons with and interested in neurofibromatosis.
The mission of The Children's Tumor Foundation is to:
- Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF");
- Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information;
- Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
* Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.