Sponsors scientific research into neurofibromatosis and provides patient education, public education programs, and information and referrals to qualified professionals regarding neurofibromatosis.
The mission of The Children's Tumor Foundation is to:
- Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF");
- Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information;
- Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
* Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.