National Fragile X Foundation

 
Data Provided By
Mile High United Way Mile High United Way - MHUW
General Information
Description of AgencyDistributes information about Fragile X Syndrome, provides information and referrals, educational materials, and a quarterly newsletter, and offers access to support groups for families.
MissionThe National Fragile X Foundation unites the Fragile X community to:
- Enrich lives through educational and emotional support
- Promote public and professional awareness
- Advance research toward improved treatments and a cure for Fragile X
LocationOut of State
Geographic AreaNationwide, Statewide
Facility/ADA AccessYes
Intake ProcedureCall or visit the website for more information.
Agency TypeNonprofit
 
Client Information
EligibilityIndividuals and families seeking information or support groups related to Fragile X.
 
Availability
Hours of OperationMonday - Friday, 8 a.m. - 4 p.m. (EST)
 
Contact Information
Physical Site Address 12100 M St NW
Physical Site Address 2Ste 170, Box 302
Physical Site City, State, ZipWashington, DC 20037-1233
Main Phone(202) 747-6210
Other Phone1-800-688-8765 (Toll-Free)
Emailnatlfx@fragilex.org
Web Addresswww.fragilex.org
 
Director Information
Director's NameTony Ferlenda
Director's PositionCEO
 
Additional Information
Date Agency Entered01/25/1996
SourceMHUW
 
Affiliated Programs and Services
This Agency: National Fragile X Foundation
Affiliated Programs: National Fragile X Foundation
Affiliated Services: Fragile X Awareness and Support Groups - National Fragile X Foundation