Cooley's Anemia Foundation

 
Data Provided By
United Way of Larimer County 2-1-1 United Way of Larimer County 2-1-1 - UWLC
General Information
Description of AgencyProvides general information on various forms of thalassemia, a genetic blood disorder, mostly commonly Cooley's anemia/thalassemia major. Support includes:

- Publications
- Information on Clinical Trials
- List of Treatment Centers
- Social Media Support Pages
- Annual Conference for Patients & Families
MissionAdvancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating medical professionals, trait carriers and the public about Cooley’s Anemia/Thalassemia Major.
HistoryFor over fifty years, the Cooley's Anemia Foundation, a 501(c)(3) nonprofit organization, has been a strong and supportive partner for families living with thalassemia. Although now national in scope, CAF began on a local level - a fact reflected in the continuing importance of our local chapters.
LocationOut of State
Geographic AreaNationwide, Statewide
Facility/ADA AccessLimited, call for specific information
Intake ProcedureCall or visit the website.
Agency TypeNonprofit
 
Client Information
Languages SpokenEnglish, Spanish
EligibilityPersons living with Thalassemia or Anemia.
 
Availability
Hours of OperationMonday - Friday, 9 a.m. - 5 p.m. (EST)
 
Contact Information
Physical Site Address 1330 7th Ave
Physical Site Address 2Ste 200
Physical Site City, State, ZipNew York, NY 10001
Main Phone(212) 279-8090
Fax(212) 279-5999
Web Addresswww.thalassemia.org
 
Director Information
Director's NameCraig Bulter
Director's PositionNational Executive Director
 
Additional Information
Date Agency Entered1/25/1996
SourceUWLC
 
Affiliated Programs and Services
This Agency: Cooley's Anemia Foundation
Affiliated Programs: Cooley's Anemia Foundation, Inc.
Affiliated Services: Thalassemia Information - Cooley's Anemia Foundation, Inc.